Wow – we’ve had an absolute flurry of activity over the last 4 days… The biggest news is that Clark has been released from UCSF, and we are all at home now.
It is great news, but it required us to “sterilize” the apartment. This included steam cleaning all the carpets, washing all the fixtures and walls, and scrubbing all the toys in the house. It was a long 2 days of preparation.
We are still in a state of isolation at home, but the rules are a little more relaxed than at the hospital. We are allowed to have the windows open for fresh air, but we have to dust regularly. As well, we can have people over (in small groups) as long as they are confident they are not sick, have not had a live vaccine in the last 4 weeks, or have not been exposed to anyone with chicken pox in the last 2 weeks. As well, we cannot take Clark anywhere out in crowds or in public enclosed spaces (malls, restaurants, etc…). All of this will continue until we see the return of Clark’s T cells and B cells.
Finally, we still have 12 medicines Clark is on, that require a strict schedule of delivery. It seems like Beth is constantly giving Clark medicines throughout the day.
One small downside of being home is that we don’t get to see Clark’s “numbers” every day. Instead, we will do blood draws twice a week (Monday & Thursday) for the lab. Beth and I are a little addicted to seeing these numbers on a daily basis, and we’re going through a little withdrawal not knowing how he is progressing. On the plus side, we’re hoping for more dramatic change between reports!
Regardless, both boys seem much happier being together. They are having fun running around and chasing each other and being spoiled by Granmom. They also really like being able to see both Mom and Dad together at home on a regular basis.
So glad you are all together! Keep up the quality effort you are putting forth, it is paying off as Clark is progressing. The smile on his face will tell you as much as his numbers! love, Aunt Sandy
I’ve become addicted to your daily posts to see how Clark is doing, so I’m going through a little bit of withdrawal as well. I can’t wait to see his numbers! Being at home with Connor and Daddy and Mom and Granmom in a sterilized environment, filled with love, can only be a positive thing for Clark’s healing. Love and hugs and giggles.
So glad that you are all at home! It must be great to be together again. Enjoy every moment.
hugs, Kanval
it’s hard not knowing counts everyday especially when you wait so long for them to show up, but you’ll get use to it! Wishing you nothing but boring boring days a head! xoxo
It is wonderful to hear that Clark is well enough to go home! We are so happy for your entire family. Enjoy!
Much Love,
Jenni , Jim, Beatrix and Poppy