BMT: Rest (Day -1)

If you talk to our doctors, they will say that today is technically Clark’s day of rest. This is because we are no longer bombarding Clark’s body with chemo!

But from my perspective, it doesn’t feel any different.

Clark is still receiving Cyclosporin and Cellcept since neither is considered chemotherapy. He is still on meds to protect his kidneys as well as the high doses of IV fluid to continuously flush his bladder. And, as well, he is still taking is usual preventative meds (antibiotics, anti-fungal, etc…). Clark also relieved a platelet transfusion today to boost his platelet numbers.  So even though it is his “day of rest”, there is still lots going on!

Then again, it is Clark’s day of rest, not mine…

Kim, our Child Life specialist, stopped by this morning with some fun new toys for Clarkie! There was a wooden puzzle, a dump truck that makes noises and some toy cars. While Kim and Clark were playing, Marianne also stopped by.  She is Clark’s physical therapist. All 3 of them played together while Mama stepped out for a nice hot coffee. :)

Overall, the day has been quiet. Patrick arrived this evening. He will be spending the night to make sure he is here for the bone marrow transfusion and Clark’s second birthday.

I’d like to reiterate how grateful I am to Clark’s bone marrow donor. Their donation was a very selfless act, and we are very grateful.  Thank you so much, whoever you are!!