Wow – we’ve had an absolute flurry of activity over the last 4 days… The biggest news is that Clark has been released from UCSF, and we are all at home now.
It is great news, but it required us to “sterilize” the apartment. This included steam cleaning all the carpets, washing all the fixtures and walls, and scrubbing all the toys in the house. It was a long 2 days of preparation.
We are still in a state of isolation at home, but the rules are a little more relaxed than at the hospital. We are allowed to have the windows open for fresh air, but we have to dust regularly. As well, we can have people over (in small groups) as long as they are confident they are not sick, have not had a live vaccine in the last 4 weeks, or have not been exposed to anyone with chicken pox in the last 2 weeks. As well, we cannot take Clark anywhere out in crowds or in public enclosed spaces (malls, restaurants, etc…). All of this will continue until we see the return of Clark’s T cells and B cells.
One small downside of being home is that we don’t get to see Clark’s “numbers” every day. Instead, we will do blood draws twice a week (Monday & Thursday) for the lab. Beth and I are a little addicted to seeing these numbers on a daily basis, and we’re going through a little withdrawal not knowing how he is progressing. On the plus side, we’re hoping for more dramatic change between reports!
Regardless, both boys seem much happier being together. They are having fun running around and chasing each other and being spoiled by Granmom. They also really like being able to see both Mom and Dad together at home on a regular basis.
